Why It's Hard to Show Up for Autoinflammatory Awareness Month
Perhaps one of the hardest truths of AutoInflammatory illness is that they cannot be seen and that so many patients work so very hard to keep it that way.
For others, the fight isn't just with flares or fatigue, it's also the daily labour of faking being "normal." Fighting despite pain. Hiding swelling, fevers, or tiredness. From not being perceived as different. Others don't even tell their closest friends or family what they're really going through.
So when Awareness Month rolls around, participation can be like coming out of the closet after working so hard to stay hidden.
If you're one of them, know that your silence doesn't negate your struggle. And if you do come out, even in a small way, you're making others feel less alone.
One of the hardest aspects for me to cope with with my FMF or any chronic illness, really, is how it wears you out over time.
You battle through flares with power, until suddenly it all just becomes too much. Not because you are not strong, but because holding it together for so long is draining.
You splinter and then after your flare begins to die down, you then piece yourself back together carefully and begin anew.
It is an unassuming strength that often goes unseen.
Your story matters. Whether whispered quietly, screamed out loud, or kept close to your chest, you are not invisible.
Your story matters. Whether it’s whispered, shouted, or kept close to your heart, you are not invisible.
Real People Real Stories Real Support
Author: Khal Sadiq
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